On Tuesday, February 14, at 1:00pm EST (10:00am PST/11:00am MST/12:00pm CST), Cure SMA will hold a webinar updating the community on the status of Spinraza access. Among the topics covered will be adminstration sites, insurance coverage, and community resources and support programs.
They look forward to hosting an open, candid, and informal discussion of where our community stands on issues surrounding access to this first-ever approved therapy, and what our next steps will be.
They encourage you to pre-submit your questions when you register, so that they can plan to answer as many of them as possible. However, you will also have the opportunity to submit questions during the webinar itself, as part of an expanded Q&A segment.
They look forward to hosting an open, candid, and informal discussion of where our community stands on issues surrounding access to this first-ever approved therapy, and what our next steps will be.
They encourage you to pre-submit your questions when you register, so that they can plan to answer as many of them as possible. However, you will also have the opportunity to submit questions during the webinar itself, as part of an expanded Q&A segment.
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