Researchers at Assistance publique – Hôpitaux de Paris (AP-HP) are still looking for participants in a study of Evaluation of Palliative and Supportive Care for Spinal Muscular Atrophy (SMA) Type 1 Patients.
The aim of the study is to evaluate the needs of the patients and their families, the medical practices, and to describe a cohort of SMA type 1 patients with the natural history of this disease. For this, a follow-up diary will be done, and this diary will be completed by the families and the different practitioners working with the patient.
The aim of the study is to evaluate the needs of the patients and their families, the medical practices, and to describe a cohort of SMA type 1 patients with the natural history of this disease. For this, a follow-up diary will be done, and this diary will be completed by the families and the different practitioners working with the patient.
More info at clinicaltrials.gov.
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