FightSMA reports that United States House of Representatives Energy and Commerce Committee’s Health Subcommittee passed the bill that might help find the treatment for spinal muscular atrophy (SMA).
National Pediatric Research Network Act is a bill to authorize the National Institutes of Health (NIH) to support the creation of up to 20 pediatric research consortia focused on diseases such as SMA.
Speaking on the bill’s behalf, Rep. Lois Capps (D-CA) singled out spinal muscular atrophy as one of the rare pediatric disorders for which this bill will help find a treatment. Rep. Capps went on to express appreciation for the bipartisan fashion in which she was able to work with lead Republican sponsor Rep. Cathy McMorris-Rodgers (R-WA), as well as Rep. Diana DeGette (D-CO), to advance this critical legislation to the full committee level.
The full Energy and Commerce Committee is expected to hold a markup during the week of September 17, during which FightSMA is advocating for consideration of H.R. 6163.
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