Avery Lynn Canahuati was diagnosed with spinal muscular atrophy (SMA) type 1, giving her at most 18 months to live. Her parents decided to make her short stay on Earth a rich and meaningful experience and created a blog of the things they wanted her to see and accomplish.
Gaining the attention of some traditional media, Avery's Bucket List has gone viral, attracting more than 4 million visits so far. With every blog post ending in an invitation to contribute to Fight SMA foundation and pledging to raise the 365,000 dollars needed to bring Dr. Kaspar's SMA Gene Therapy program through Sophia's Cure Foundation, the blog managed to raise an incredible amount of attention for the yet incurable genetic disease, for which the worldwide SMA community is truly grateful.
Unfortunately Avery passed away on Monday, only five months old, due to pulmonary complications related to SMA. Our hearts go out to everyone who was touched by her contagious smile and we are grateful for everything her blog helped achieve.
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